PDA Approaches
What really helps – and why we need to rethink current approaches
For autistic people with a PDA profile, traditional support approaches can often cause more harm than good. Things like firm routines and behaviour-based rewards might be well-intentioned but can increase anxiety and reduce trust.
Why changing mindsets can feel difficult
A human rights perspective
Mindset first: a foundation for support
Instead of starting with strategies, we suggest starting with three relationship fundamentals:
- Trust in relationships
- Equity
- Compassion
Trust in relationships
- Actively listening, showing genuine interest and empathy in conversations and making sure the other person feels heard and understood.
- Recognising and respecting each other’s need for control and choice, avoiding pressure or unnecessary demands.
- Being reliable by following through consistently on commitments to build a sense of safety and predictability.
- Sharing thoughts and feelings openly, clearly, and kindly to avoid misunderstandings.
- Staying calm and patient. Responding calmly, especially during challenging moments, to maintain a feeling of safety and trust.
- Offering acceptance without judgement and supporting each other to express thoughts, emotions, and reactions openly without fear of criticism.
- Respecting each other’s boundaries and provide space to recharge, reducing feelings of overwhelm and anxiety.
- Genuinely apologising when we get things wrong or make mistakes.
Equity
- Regularly checking in about what feels comfortable and fair to everyone.
- Being open about your own limits and feelings to create mutual trust.
- Clearly communicating your needs and boundaries to others when you feel able.
- Suggesting ways of interacting that feel less demanding or controlling to you.
- Remember it’s okay to pause, say no, or negotiate when you feel pressured or uncomfortable.
- Reflecting regularly on power dynamics and actively trying to shift them towards partnership rather than control.
Compassion
- Mindfulness and awareness. It can be helpful to notice internal critical voices without judgment and gently remind yourself that experiencing difficulty with demands is a part of being a PDAer.
- Affirmations and positive self-talk. You might consider affirming your worth and dignity with phrases like, “I am allowed to take care of my needs,” and “my anxiety does not define my worth.”
- Connecting with people who understand can help you feel validated and understood. Knowing others share similar experiences can reduce feelings of isolation and self-criticism.
- Setting realistic expectations. Acknowledging your boundaries and capacity without guilt. Recognising that doing less when overwhelmed is self-care, not a failure.
- Self-compassion is important because it enhances emotional well-being and reduces stress.
A starting point: PANDA as a way in
The PANDA mnemonic was originally created as a memory aid — a way to introduce the kinds of flexible approaches that tend to help. These aren’t separate strategies to apply one by one but overlapping ideas that support each other.
Prioritise and compromise
- Stripping things back to the essentials. Many families use just three non-negotiables (like safety rules) and negotiate everything else.
- Talking about the why. If something needs doing, share the reason — especially if it’s linked to a ‘higher power’ like the law or biology.
- Offering meaningful choices. This means real choices like how or when, not just which colour.
- Being willing to compromise. Which might mean going barefoot today and packing shoes just in case.
- Accepting when things aren’t possible. “Looks like this isn’t the right moment — we can try again later.”
Libby Hill
Anxiety management
Tara *
- Internal pressure to comply conflicting with the urge to resist.
- Intolerance of uncertainty (not knowing what’s coming).
- Processing difficulties (language or social).
- Sensory overload.
- Fear of failure or loss of autonomy.
- Keeping a journal or diary can help identify triggers over time.
- Using a low-arousal approach. This involves having a calm tone, slow pace and gentle body language. Avoiding confrontation or escalation.
- Reducing uncertainty by giving flexible outlines, soft timelines, and ‘in the moment’ adjustments.
- Allowing time to think because processing takes longer, especially when anxious.
- Co-regulating by breathing together, using humour or distraction.
- Treating panic like panic, it isn’t misbehaviour — it’s overwhelm.
Negotiation and collaboration
Jane *
- Planning together “How do you want to do this?”
- Respecting a no. If a person can’t, they can’t.
- Working side by side. Doing tasks together. Offering partnership, not supervision.
- Modelling emotional honesty. Sharing things like “I’m having a tough day too. I might need a break.”
- Focusing on trust-building by keeping promises, being predictable and avoiding shaming through your words or behaviour.
- “It’s not about ‘expecting them to shift’ — it’s about offering the space for mutual understanding, without pressure.”
Disguise and manage demands
Paul, partner of a PDA adult
- Direct requests (“Get dressed”).
- Internal expectations (“I should be able to do this”).
- Social demands (conversations, eye contact).
- Routines (yes — even a favourite activity can feel like a demand if it becomes expected).
Practical ideas you could try:
- Using declarative language: “Your coat’s by the door” instead of “Put on your coat”.
- Wondering aloud: “Hmm… I wonder if the bin’s full”.
- Offering info, not instruction: “We’re leaving in 10 minutes”.
- Using third-person or humour: “Captain Dinosaur needs her boots!”
- Writing things down: a note can feel less intrusive than a voice.
Adaptation
Shani *
Practical ideas:
- Having a Plan B (and C): this isn’t failure — it’s flexibility.
- Trying novelty, roleplay or humour: pretend to be secret agents. Race the clock. Make things silly.
- Noticing signs of burnout: pull back when they’re depleted.
- Adapting the environment: move coat hooks. Change routines. Avoid demand-stacking.
- Equalising the give and take: when a PDAer does something hard for them, you could soften demands later. But don’t frame it as a reward — it’s about fairness, not behaviour control.
Manni *
Low arousal approaches and PDA
Core principles of the low arousal approach
- Evidence suggests that maintaining low-stimulation, predictable, and calming environments significantly reduces anxiety-driven behaviours. For PDAers, this might mean reducing sensory input or incorporating familiar/ comforting elements into their daily routines (McDonnell, 2019).
- Demands can cause intense anxiety for PDA people, resulting in avoidance or challenging behaviours. Studies show significantly reducing the frequency and intensity of demands can lead to measurable reductions in these behaviours (Christie & Fidler, 2012).
- Caregivers’ and support staff’s ability to manage their responses and present calm, neutral, and non-confrontational behaviour is critical. Research shows adult emotional regulation significantly influences anxiety levels and behaviours in neurodivergent populations (McDonnell, 2019).
- The use of low arousal techniques across care settings led to decreases in reported incidents of aggression and anxiety-driven behaviours. The evidence showed improvements in the quality of life for both individuals and caregivers. It also showed reduced need for crisis interventions. (McDonnell, 2015).
- Qualitative evaluations of the Low Arousal Approach show substantial improvements in caregiver satisfaction, decreased stress levels, and enhanced relationship dynamics between individuals and their support networks (Christie & Duncan, 2015).
Practical implementation examples
- Knowing which demands consistently heighten stress enables you to plan around them. Scheduling sensory breaks or anxiety-reducing activities can help.
- Flexible and adaptable routines help to reducing anxiety, providing control and predictability.
- Managing social interactions can help avoid sensory and emotional overload. This can help you have more rewarding social experiences and relationships.
- Practical implementation examples for supporting PDAers.
- Structuring demands gently and offering choices rather than instructions significantly reduces anxiety. This has shown positive outcomes in engagement and behaviour (Christie & Fidler, 2012).
- Non-verbal Communication: Approximately 60% of communication is non-verbal. Neutral and calming body language is crucial to prevent anxiety (McDonnell, 2019).
- Modelling calm, controlled responses can reduce anxiety and distressed behaviours. Caregivers who assess and adapt their emotional reactions can see a reduction in anxiety-driven behaviours (McDonnell et al., 2015).
Why the low arousal approach is effective for PDAers
Understanding equalising (levelling) in PDA
- Stripping things back to the essentials. Many families use just three non-negotiables (like safety rules) and negotiate everything else.
- Talking about the why. If something needs doing, share the reason — especially if it’s linked to a ‘higher power’ like the law or biology.
- Offering meaningful choices. This means real choices like how or when, not just which colour.
- Being willing to compromise. Which might mean going barefoot today and packing shoes just in case.
- Accepting when things aren’t possible. “Looks like this isn’t the right moment — we can try again later.”
- Validating feelings: it can be helpful recognise and affirm a PDAer’s feelings of unfairness or anxiety, even if the situation seems minor to you.
- Being willing to negotiate and adapt requests. Rigidity can increase anxiety and trigger equalising behaviours.
- Being transparent about expectations and reasons behind decisions. This can help PDAers feel respected and understood.
- Recognising that equalising behaviours aren’t personal challenges to authority but attempts to regain emotional balance. Responding calmly and empathetically is helpful.
Ross Greene’s Collaborative and Proactive Solutions (CPS)
- Empathy: listen to the child’s concerns. For example, say, “I noticed getting ready for school is really hard. What’s up?”
- Define the Problem: explain your concern calmly. For example, “I worry because we need to leave on time.”
- Invitation: work together on a solution. “How can we make this easier for you?”
Final thoughts
Supporting a PDAer is not about applying techniques but building a relationship based on trust, flexibility, and a shared sense of safety. What helps will vary. Remember you don’t have to get it right all the time — you just have to stay open, kind, and willing to understand.
